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Autism and Additional Resources SectionNBCI is pleased to provide educational and informational materials for parents, physicians and educators interested in learning more about autism.
Autism and Your Religious Community
Faith is a very important part of life for so many families in the autism community. Our hope is that all families affected by autism may be welcomed in their house of worship, and able to become active participants in their faith community.
We have put together a list of resources that families and faith leaders may find helpful.
Subject: Lupus Clinical Trial Participation Opinion Survey
Do you have lupus? We need your help to improve lupus treatment for African Americans.Purpose: NBCI and the Lupus Foundation of America are working together to further NBCI’s (National Black Church Initiative) Clinical Trials Education Awareness and Participation Program (CTEAPP) by conducting a research study in collaboration with Tufts University.
Lupus is three times more common in black women compared to white women. You can help improve lupus treatment and awareness of treatment options for African Americans with lupus by sharing your experience and feelings about clinical trials.
- How can you help?
- If you’re an African American diagnosed with lupus, you can participate by taking this one-time (10 minute) survey
- Who is conducting the survey?
- The Lupus Foundation of America and its partners, including NBCI, are conducting this survey to better understand lupus patients’ experience with and awareness of clinical trials. This is made possible by a grant from the Office of Minority Health.
- There is no foreseeable risk to you associated with participating in this survey.
- Is the survey confidential?
- This research study is anonymous. We will not collect any information that could identify you.
- If you decide to participate in our drawing for a gift card, we will collect your email address to notify you. Your e-mail address will be kept separate from the survey data. All respondents who take the survey will be eligible to participate in the drawing from which 20 Visa gift cards will be awarded (worth of $50) to 20 respondents chosen randomly from the total respondents.
- When responses are analyzed and shared, they will be done so in summary form so that no individual can be identified.
- Participation in this survey is completely voluntary, and you can exit the survey at any time if you decide you no longer want to participate. Refusal to participate will not result in any penalty or loss of benefits to which you are otherwise entitled.
- You will not receive a direct benefit from this survey, but you may potentially benefit yourself and others by helping create awareness and education about lupus clinical trials.
- Who do I talk to if I have questions?
- If you have any questions or need more information about our study, please contact Mary Jo Lamberti or call 617-636-3479.
We appreciate your time for participating in this important study to improve lupus treatment!
If you wish to participate, please click on the link below to take the survey: